A clinical registry for prospective data on retinoblastoma epidemiology and clinical course

Retinoblastoma is a childhood tumor of the retina that affects approximately 44 children in Germany and Austria each year. Overall survival in Europe exceeds 95%, but late effects are a major concern. Retinoblastoma is a very rare disease and published documentation for making evidence-based treatment decisions is scarce. The clinical registry, RB-registry, aims to gather prospective data on retinoblastoma epidemiology and clinical course in Germany and Austria to fill this gap in documentation. Reference evaluation for neuroradiology and histopathology will improve the comparability of the investigations performed at different participating centers.

Beteiligte Wissenschaftler:
Akad. Rat Dr. Dipl.-Stat. J. Gerß
Dr. rer. nat. M. Borowski, Dipl.-Stat.

Studienleitung:
Dr. med. Petra Temming


Förderung:
Deutsche Kinderkrebsstiftung