External Links
- Self support group Germany
- Self support groups Europe (ENI)
- Self support group USA
- F.I.R.S.T.
- 4hc - for handicapped
- Medical faculty WWU Muenster
- University Hospital Muenster
- Dermatology Hospital University Muenster
- Center for Medical Biometry, Epidemiology and Information Technology (IMBEI) Mainz
- Department of General Human Genetics, University Hospital Giessen and Marburg
- University Cologne
- The Cologne Center for Genomica (CCG)
- The Cologne Center for Genomics (Roughskin)
- DDG Arbeitsgemeinschaft Pädiatrische Dermatologie
- ZZMK Carolinum, Frankfurt (Papillon-Lefèvre-Syndrom)